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Harvey Parker
There might be a lot of skepticism among the general public about this
because they think, "Well, when I was a child, there were no ADHD patients in my
classroom. So what has changed?"
| A child psychologist, Parker founded
Children and Adults with ADD (CHADD), a nonprofit organization.
He lobbies frequently on behalf of CHADD in Washington, D.C.,
and is now the president of ADD Warehouse, a company that sells
ADHD materials.
Read an
interview with Parker |
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I think there is a lot of skepticism about
ADHD. It's one of the areas of psychology and psychiatry that we know a
great deal about, yet it's one of the most controversial
diagnoses in the area of mental health.
ADHD children have been around
for as long as there's been people. We've always seen people who were
hyperactive, inattentive, or who had difficulty concentrating or organizing
themselves.
But more so, we've paid attention to these behaviors and labeled them
differently. Before we used to label them in some ways as "b-a-d" children
having behavior problems. And now we see that it's really not under their
control so much, and we see them more as children suffering from a
neurobiological disorder of self-control and attention problems.
So there hasn't been a tremendous increase in the number of children with
ADHD. It's not like it's in the water and you become infected by it. It's just
that we've improved our sophistication in terms of diagnosis and recognition of
this disorder, and there are more people looking out for these children now than
there were in the past. . . .
In my opinion, several things caused the rise in the medication prescribing.
Number one, parents understood from other parents that ADHD exists, and they had
their kids evaluated. Doctors understood that medication was an appropriate
treatment for ADHD, not a last-resort treatment, but in some cases, a
first-resort treatment.
We realized that kids with ADHD don't have to stop taking medication
when
they become adolescents. We used to think that stimulant medication would stunt
growth. We realize that that doesn't happen. So we continued prescribing
medications to these children through adolescence.
We also realized that children could take medication more than once a day.
They can take it in the morning, in the afternoon and evening, and even late in
the afternoon when they come home from school to help with homework problems.
And we also realized that adults could benefit if they have ADHD and they take
medication. So all these factors combined to cause a rise in the prescription
rates of medication today. . . .
Harold Koplewicz
| Vice chairman of psychiatry at New York University,
Koplewicz believes that ADHD is a legitimate brain disorder. He
wrote It's Nobody's Fault: New Hope and Help for Difficult
Children and Their Parents. He is director for the New York
University Child Study Center.
Read an interview with Koplewicz
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. . . The reason for increased prescriptions would most probably be that we
have more kids diagnosed, and therefore more children needing treatment. We have
an effective treatment. In fact, we know, most times, that once we find an
effective treatment and we let the public know that there's an effective
treatment, patients start to appear.
I think the best example is another disorder. Look at obsessive-compulsive
disorder. When I was in residency training, they told you that people who have
obsessive-compulsive disorder . . . were only 1 percent of the psychiatric
population. This meant that, from the people who came to a clinic, one out of a
hundred had OCD. Today, since we started doing some epidemiological work on
this, we find that it's three out of a hundred of the general population.
What happened in 20 years? Was our water supply different? How did we all of
a sudden find ourselves with lots of patients and lots of people in the
population who have obsessive-compulsive disorder, when 20 years before, we
didn't have it?
The big change was that we found a treatment that really worked--two major
treatments. . . . Then we had a whole new generation of medicines, like
Prozac
and Luvox and
Zoloft, and they worked. And then we had a whole group of
psychologists who came up with talk therapies that were very effective in
treating these disorders. So patients who thought they were going crazy and
didn't want to share it with anyone because there wasn't an effective treatment,
have now come out of the woodwork and say, "I have OCD and I need to be
treated for it. And I'm not even embarrassed about it, because I want to get rid
of it."
Is there under-medication or over-medication of ADHD kids?
I don't know if there's under-medication or over-medication. I'm not sure if
the right kids are getting medicated. That's part of the problem. To do a proper
diagnosis of a child who has a psychiatric illness or a child who has ADHD
really requires time. It takes time to interview the mother and father. It takes
time to get ahold of a questionnaire, for observation from the teacher. It takes
time to examine the child and talk to the child. And all this then requires some
thinking and putting together and synthesizing this information, to decide what
is the possible diagnosis, and what else could be causing these symptoms.
When kids are being diagnosed by primary care physicians on a very, very
tight time schedule . . . I question whether or not the right children are
always getting the medication. There are also certain populations in the United
States that are very opposed to giving their children medication. Historically,
the African-American population has a bias against giving psychostimulant
medication to their children.
. . . There are regional differences in the United States. For some reason,
we find now that the southeast part of the United States seems to have higher
prescription rates of Ritalin and Ritalin-like medications versus the rest of
the country. I'm not sure we know enough as to what is happening in those parts
of the country, versus other geographical parts of the country, that is
affecting the prescription policies and the prescription practices.
Russell Barkley
| Professor of psychiatry and neurology at the University of
Massachusetts Medical Center in Worcester. Author of numerous
books on ADHD, including ADHD and the Nature of Self-Control and
Attention-Deficit Hyperactivity Disorder: A Handbook for
Diagnosis and Treatment.
Read an interview with Barkley |
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The question that keeps being raised in the media now is whether there's
over- or under-medication. We don't know for sure, because we don't have any
national databases where we keep track of all prescriptions in the United
States, like some other countries do. So we can't turn to that database to
answer the question.
What we have to do is to go out and find large regional databases that are
being kept. For instance, each state is required to keep records on all of the
Schedule II drugs, like stimulants, that are being prescribed within their
state. So we may be able to go to a state, as was done in the state of Maryland
just recently, and look at the number of prescriptions being used for ADHD. We
might get some indication there. We can also go to school districts and survey
them and see what percentage of children is on medication. When we do this, we
find a rather dramatic difference in figures that's difficult to reconcile.
If we go out to Utah where a survey was recently done, it's about 1.4 percent
of children in the Salt Lake City public schools. If we go to five different
metropolitan areas, as Peter Jensen did in one of his studies, we might find
that the figure is around 1.8 percent to about 2.4 percent of ADHD children who
are taking medication. In their own survey, the state of Maryland recently found
that about 2.6 percent of children within the state were taking medication
during school hours for management of ADHD. So it just depends on where you
look.
If you were to average across all of these figures, it appears to be that
somewhere between about 1.5 percent and about 2.5 percent of school-age children
are taking medication right now for ADHD. Now, you have to look at that figure
in the context of how much ADHD is there. It's the only way you can answer the
question of over-medication, and that is, what's the reference point? We know
that approximately 5 percent to 7 percent of school-age children have this
disorder. If we use the conservative figure of 5 percent, and we know that about
2.5 percent of individuals may be taking medication, there's your answer. We
don't have over-medication. Only about half of all ADHD children are ever taking
medication for their disorder.
Lawrence Diller
. . . Why are we seeing a rise in the use of these drugs?
| Author of Running on Ritalin, Diller received his medical
degree from Columbia University's College of Physicians and
Surgeons. While he has diagnosed some children in his private
practice with ADHD, Diller has criticized the proliferation of
the ADHD diagnosis and the rise of "cosmetic
psychopharmacology."
Read an interview with Diller
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. . . It starts from the fact that we, as a culture--more than any other
culture--seem to have accepted biology and the brain as the reason for
maladaptive or poor behavior. . . . American psychiatry had already begun to
focus on the brain in the 1960s and 1970s. But it really wasn't until Prozac
that the American public became interested in the brain for behavioral and
emotional problems. Prozac will allow people, with far less side effects than
earlier antidepressants, to improve their mood and become more resilient. So it
became more acceptable and easier to take a psychiatric drug. Prozac was
introduced in 1988. The explosion in Ritalin occurred in 1991. And I believe
that Prozac paved the way, in terms of acceptability, for the use of Ritalin in
children, though there are many other factors as to why Ritalin took off.
Besides the change in American psychiatry and the public's view of behavior
being brain-related, we had other things going on in the 1960s, 1970s, and
1980s. To begin with, you needed two parents to work to maintain the same
standard of living than you did in the 1960s. . . . That means that now we have
institutional day care for children. . . . We have many more latchkey kids.
That's one factor, a major factor.
We have educational paranoia that began in the late 1980s with the downsizing
of the white-collar middle class. . . . With computers and stuff, if every child
doesn't get a four-year-plus college education, they're not going to have any
choices; they're not going to be successful. So what does that mean? We have the
expectations of three-year-olds learning their alphabet and their numbers. We
have five-year-olds all learning to read in kindergarten. We have my
eighth-grader learning algebra a year earlier than I learned it. This goes on
all the way through the educational system. So we have more pressures on kids.
And all through the 1970s and 1980s, we saw an expansion of classroom size. . .
. So, not only are we expecting more from the children, but we're delivering
less to them by their parents being at work, and by the teacher having more
students per kid.
We have other factors going on. We have a continuing erosion of parental
discipline that probably began 150 years ago. But we had the self-esteem
movement in the 1980s that basically said that conflict is not good for
children, that it further erodes their self-image. There was a misreading of
Freud in the 1950s that said to reduce stress and your child will be
neurosis-free. . . . All these things were going on through the 1970s and 1980s.
And yet, Ritalin production remained stable all through the 1980s. And in 1991,
it takes off.
The question is, what was the spark? If we look at the history, and we look
at the data, the only thing that changed was the administrative change in the
educational laws guiding our country's accommodations to children. In 1991, it
began to include children with the diagnosis ADD or ADHD. And I think parents
were genuinely trying to get help for their children. But when they found out
that they could get special services and accommodations by getting the
diagnosis, they flocked to their doctors. Word spread, and along the way, you
also got Ritalin.
You've stated that there's over-medication.
There's over-medication and there's under-medication, depending on the
community you assess, and your values for it. I generally feel that in the
community I work in, which is a white middle- to upper-middle class community,
there is over-medication.
Peter Jensen
You've been a psychiatrist for many years now and I'm sure that in your
lifetime you've seen ADHD evolve ... How has it changed?
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Formerly the head of child psychiatry at the National Institute of Mental
Health, Jensen was the principal author of the landmark NIMH study NIMH, the
Multimodal Treatment Study of Children with Attention Deficit Hyperactivity
Disorder (MTA). He is now the director of Columbia University's Center for the
Advancement of Children's Mental Health.
Read an interview with Jensen
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Just over the last 20 years, our understanding and appreciation of ADHD has
changed a whole lot. Twenty years ago it was a little bit of an
off-the-beaten-path kind of disorder, in the sense that people worried about a
whole host of things, and ADHD was one of them. Nowadays, when we think about
treating children and the most common problems they present with, ADHD is
probably the major one. It comprises the lion's share of why children are often
seen and why they're often treated. ...
There are reports that the use of psychotropic medications has increased
700 percent in ten years. And there are other reports that say there's a
three-fold increase. What's the truth to that, and what's behind this trend?
Whether it's increased three-fold or five-fold or seven-fold is really not
the big point. . . . The story is that it's increased enormously, and that's the
question. And the answer to that is, I think, two or three major factors.
The first is that, in the early 1990s, the Department of Education mandated
the states, and said, "Many of you have thought that ADHD was a thing you didn't
have to worry about. But we've reviewed the evidence and the literature, we've
listened to parents, we've listened to the scientists, we've held congressional
hearings on this, and we're convinced that this disorder fits under special
education law. And you can't say to a parent, 'It's not our problem.' It is your
problem. And so, be on notice that that's our position." . . .
At the same time we had, I think, increasing power and passion on the part of
parents, who felt like their children had fallen between the cracks, just like
with learning disabilities. And those parents were organizing, becoming more
eloquent and more effective, and understanding that they really had to kind of
get their oar in the water, to speak up, because their children's lives and
health was at stake. . . . So schools began to realize they had to do something
about it, and it put them on line to use their resources for these children. . .
. And so while we don't know this for certain, a lot of the big rise happened
right around those years, 1990, 1991, 1992 and 1993.
Now, the other big rise, and the other big factor, I think, that took place
during that time, was health care reform. And health care reform hit mental
health with a vengeance in many ways. Because what it said to mental health was,
"We're cutting way back on the kind of therapies that we're going to offer, and
we're going to set a total number of sessions. And we're going to say when you
can get sessions and why you can get, say, therapy sessions."
So what we hear from many parents was that they could not longer go see a
therapist for 50 or 60 sessions a year, every week or twice a week, or
something. For ADHD they would be asked, "Is your child getting medicine?" . . .
More and more, doctors were being asked to say, "We can only approve therapy
sessions if you've also given a trial of medicine." Or parents were being told,
"We can only give therapy if the child is also getting medicine."
How does one explain that the US consumes five times more methylphenidate
than any other place in the world?
It's a not a very hard explanation, actually. I and other colleagues were at
a meeting set up by the Council of Economic Ministers in the European Union.
Their drug enforcement czar and their health czar, or their representatives,
came from each country to this meeting. And the reason they came to a meeting
was because there were concerns that they were hearing more and more from
parents around Europe that their children had ADHD.
We know from international studies that ADHD is pretty much the same across
all of the Western world. We're not sure about non-civilized areas, or
less-civilized Third World areas. But across Europe, it's pretty much always the
same, and parents were feeling that their children were being denied treatments.
. . . You go to some countries and they'll say, "Well, you can prescribe
Ritalin, but only a child psychiatrist can do it." In the former Eastern bloc,
there may be five child psychiatrists in the entire country, and three million
children. I tell you, that's going to really cut the prescriptions way down.
In another place, they'll say, "You can only prescribe this medicine if it's
been approved by three independent professionals." In other places, you can't
prescribe it at all. . . . What this Council of Ministers concluded is that ADHD
in Europe is probably under-diagnosed and under-treated by 20 to 1. ... In some
countries, they're using anti-psychotic medicines at terrible rates to treat
ADHD children. So, yes, they're not using Ritalin. They're using things that are
much less safe, that we know cause tics or permanent kinds of motor problems if
used for a long period of time. . .
William Dodson
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A psychiatrist in Denver, Colorado, Dodson ascribes ADHD mostly to biological
causes. He is paid by Shire Richwood, the makers of Adderall, to educate other
physicians about the drug's efficacy.
Read an interview with Dodson
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Twenty years ago, the only child who was going to be identified, and
therefore treated, was the hyperactive child who was pinging off the wall, who
was aggressive, uncontrollable, and obnoxious. And so this was the child who was
referred for evaluation. This was the child that everybody could agree was
hyperactive and who would benefit from medication.
It has only been in the last 10 to 12 years that we see that actually, the
hyperactive aggressive child makes up only a small percent--20 percent or 25
percent--of people who have ADHD. There are far larger numbers of people who
don't have any hyperactivity at all, and they are purely the inattentive
subtype. . . .
The inattentive and impulsive symptoms continue unabated for a lifetime. And
so it is this recognition--that there are a lot of people out there who have
purely inattentive symptoms, who aren't hyperactive, who are not aggressive or
obnoxious--who also have this disease. And this is where we start picking up
females. When I was in medical school, I was taught that women did not get
Attention Deficit Disorder. It turns out that women get it just as often as men
do. The assumed prevalence is about one to one, male to female. It's that it's
exceedingly rare for a woman to be hyperactive. . . . And so now what we're
doing is doubling the apparent prevalence rate by recognizing that the quiet,
inattentive child who daydreams in the back of the class also has Attention
Deficit Hyperactivity Disorder, just without the hyperactivity. . . .
So that's why we have such a rapid increase in the prescription rates?
Dr. James Swanson in California did a study of that. And we are seeing an
increase in the number of people who are being diagnosed and treated. But the
biggest increase in the number of prescriptions, according to Swanson, is that
people are being treated for longer periods of time. Once a person starts on the
medication, we now recognize they'll benefit from the medication their entire
life. They're being treated for more days--not just Monday through Friday while
they're in school. They're being treated 7 days a week, 52 weeks a year.
There is more of an acceptance of the disorder. People are more willing to
give their children a trial on medication. And there's more of an awareness in
teachers and Girl Scout leaders and doctors, in people who work with children,
to recognize the disorder, and to suggest to parents that they might want to
have it looked into.
Lots of people say there's also over-diagnosis--that a certain hysteria is
taking over that it has become the disorder of the decade.
It is very common for people to say very emphatically that the diagnosis is
being too easily made. But there's very little evidence to support that point of
view. And there's a lot of evidence to support the exact opposite point of view.
In 1995, the National Institute of Mental Health did a study, not only of ADHD,
but of all childhood mental disorders. They found that, in the previous year,
only one in eight children who had ADHD received any services--medication or
otherwise.
The diagnosis is still missed two out of three times, and even when it is
made, it is under-treated. ...
How does the ADHD diagnosis differ between social classes?
The disorder is found pretty much equally through different socioeconomic
groups. ADHD is found in every culture, in every socioeconomic group, in pretty
much the same prevalence. . . . I'm aware of one study that showed that black
inner-city males were diagnosed with ADHD more commonly than you would expect
from the general population. But again, this could be clustering. It could very
well be a valid diagnosis. ...
Harvey Parker
|
A child psychologist, Parker founded Children and Adults with ADD (CHADD), a
nonprofit organization. He lobbies frequently on behalf of CHADD in Washington,
D.C., and is now the president of ADD Warehouse, a company that sells ADHD
materials.
Read an interview with Parker
|
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Sometimes health care providers might write a prescription for
Ritalin or
Adderall or another stimulant medication, just as a test to see if the behavior
improves. And if it does, voila: ADHD. But we can't use those medications to
confirm a diagnosis, because most kids, even if their behavior was normal, would
improve in terms of attention and behavior with these medications. So the
diagnosis takes some time, and in our managed care system, time is something
that doctors often don't have. So in some areas of the country, there can be
over-diagnosis.
On the other hand, the diagnosis of ADHD is sometimes missed, because there's
either a lack of awareness about ADHD, or a lack of time taken to properly make
the diagnosis. For example, one out of six children in our country comes to a
doctor's office with a diagnosable behavior or mental health disorder. Parents
often don't report these symptoms to their primary care doctor, their
pediatrician, or the family practitioner. . . . We should really be concerned
about misdiagnosis a lot more than overdiagnosis. Of course, we don't want to
diagnose kids with ADHD who don't have it, but we certainly don't want to miss
the diagnosis in kids who do have it.
next:
More and More Kids Taking Ritalin
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Written 2000. Reviewed: 02/2006
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